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Data and privacy

Privacy Policy

This Privacy Policy explains in detail the types of personal data we may collect about you when you interact with us. It also explains how we’ll store and handle that data, and keep it safe.

We know that there’s a lot of information here but we want you to be fully informed about your rights, and how The Haemophilia Society uses your data.

For example, we will explain things such as how we store and protect your data to build a picture of you.

We want everyone who supports us, or who comes to us for support, to feel confident and comfortable with how any personal information you share with us will be looked after or used. We hope the sections detailed in this policy will answer any questions you have but if not, please do get in touch with us at

You can read our full Privacy Policy here.

It’s likely that we’ll need to update this Privacy Policy from time to time, so please do check back.