Our president is Baroness Molly Meacher, a crossbench peer who has been active in the House of Lords, particularly on issues of mental health and drug reform, and whose expertise in health and social care and involvement with the NHS helps to raise the issues and concerns of Haemophilia Society members with other parliamentarians. The late Lord Morris of Manchester was president of The Haemophilia Society until he passed away, aged 84, in August 2012.
The Society’s board of trustees meets six times each year to give strategic direction to our work. Trustees are responsible for governing our organisation, and as a smaller charity, they make a real difference to what we do.
Trustees are volunteers who draw on personal experience of living with a bleeding disorder, or wider knowledge and expertise in e.g. charity governance, fundraising, finance, communication, advocacy, understanding of the NHS or government relations.
To find out more about becoming a trustee, please contact Clive Smith, chair of trustees by phone 020 7949 0780 or email firstname.lastname@example.org
If you are interested in becoming a trustee, elections are held each year. Members will receive papers about this in the autumn. To understand the role of a trustee you can read the trustee induction pack here.
In 2015 The Haemophilia Society launched an exciting new programme to encourage, develop and empower our young members to become our future leaders and advocates and support them in their career development. If you know of someone, or you are between the ages of 18 and 22 and would like to find out more please email us for further information.
Our growing team of staff handle the day-to-day running of the charity, from answering the calls to organising the events – and everything in between!
Community & Events Fundraiser
Grant & Trust Fundraiser
Communications, public inquiry
Head Of Finance
Programmes and Events Manager
Head of Services
Office Manager & PA to CEO