Welcome to World Haemophilia Day Today is World Haemophilia Day. It is a day where we hold events to promote understanding and awareness of bleeding disorders. We do this while raising much needed funds for The Haemophilia Society to support our campaigning, events and services. This year’s theme This year,
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The Haemophilia Society contributes to Health Select Committee Brexit report
The Health and Social Care Committee in the House of Commons today published its latest report on the impact of Brexit on medicines, medical devices and substances of human origin. We are pleased that it raises issues that we agree need to be considered by the Government to ensure the
The Terms of Reference for the Inquiry
The Terms of Reference of a Statutory Public Inquiry define the scope of the Inquiry’s investigations. The Chair will be consulting on the Terms of Reference in the next couple months. This is the first important step in the setup of the inquiry and it is vital that the whole
The Haemophilia Society demands Inquiry into Contaminated Blood Products
The Haemophilia Society, alongside campaigners, has written to the Prime Minister calling for a public inquiry into Government and NHS negligence during the Contaminated Blood Scandal in the 1970s and 1980s which led to the deaths of over 2,000 people and thousands more infected with HIV and Hepatitis B & C and
Work, Heath and Disability Consultation – Member Input
The Government’s Work, Heath and Disability Consultation closes at the end of this week. The Haemophilia Society has been working on a response to the series of consultation questions but would like further input from members on issues to raise or specific situations to highlight. Overall, we are pleased that
APPG on Haemophilia and Contaminated Blood 8th February
The APPG on Haemophilia and Contaminated Blood met last week on the 8th February to discuss the Agenda below. Agenda Introductions and Apologies Update on the call for a Hillsborough-style independent panel Passporting to benefits for those affected by the Scandal Developments in the implementation of the new Support Scheme