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Updates

OFFICE UPDATE

Due to ongoing government guidance around working safely during COVID-19 our staff continue to work from home to ensure that everyone is kept safe.   We currently have a reduced team working and are still contactable via our usual phone numbers and email addresses.    We continue to offer support and

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EHC Statement on Desmopressin Nasal Sprays availability

Late last week, we were informed of an international recall of all Ferring Parmaceuticals Limited nasal sprays containing desmopressin, including Octim®, Octostim®, Desmospray®, DDAVP Spray®. This spray is typically used in people with Von Willebrand Disease types 1 and 2 (except 2B) and mild haemophilia. It is also used for women with heavy menstrual

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COVID-19 TESTING RESEARCH STUDY

If you have received this letter in the post and you have a bleeding disorder you will NOT be able to take part in this research study. The Haemophilia Society called the FREEPHONE number on the letter to query why and was informed that “its for safety reasons as this

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Update from Board of Trustees Chair, Clive Smith

5 June 2020 – Here is an update from our Chair, Clive Smith. This week Clive talks about our valuable volunteers, the Peer Review report on centres and the virtual event linked to this, new factsheets about Hemlibra and shares details about the launch of the WFH Virtual Summit: Connecting

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Update from Board of Trustees Chair, Clive Smith

29 May 2020 – Here is an update from our Chair, Clive Smith. This week Clive talks about our new rare diseases factsheets now available to download from our website, he gives an overview of recent board meetings and shares details about a range of virtual webinars and conferences being

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