Are you a Little Warrior? Why not take part in Little Bleeders very first photography competition by sharing images of your sporting achievements. You’ll be in with a chance of winning: Alex Dowsett kit and a 1hr Record VIP experience. Alex is excited to be on the judging panel and
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Ladies Festival raises almost £3k for The Haemophilia Society
Dancing, sumptuous dining and fun were had by all at the recent masonic Ladies Festival held by Atlantes Lodge No.4756, who chose The Haemophilia Society as this year’s chosen charity raising nearly £3000, with £400 alone coming from the auction of a signed Manchester United football! The evening began with a
Statement by the Board of Trustees of the Haemophilia Society on Contaminated Blood
The Haemophilia Society has today issued a clear statement on what we believe on the Contaminated Blood issue. This is our stance, agreed by our Board of Trustees, and is the basis for our campaigning. This statement builds on the work of the Society since the 1980s but is a
Bears4Rare: experts call on government to provide fair and fast access to treatments for rare disease patients
Rare conditions affect approximately 1 in 17 people in the UK.1 Although they are living with lots of different conditions, and only 5% have approved treatments,2 many face similar challenges with access to care and medicines. New data included within the Equity and Access report (initiated and funded by Shire
Response to the DH Consultation
The Haemophilia Society has responded to the Department of Health consultation Infected Blood: reform of financial and other support. You can read Haemophilia Society’s response to the Department of Health’s consultation response here
Contaminated Blood Demonstration
A steering group has been set up to try and coordinate a demonstration on 12 April, the day of the Parliamentary debate. The group includes representatives from many of the campaigning groups and has tried to be as inclusive as possible. You can read about the plans of the Contaminated
Update on contaminated blood campaigning and influencing work
The last few weeks have been very busy. We have been Liaising with MPs to ensure parliamentary questions are asked to answer some of our questions about the consultation and highlight the areas of concern. Meeting with a lawyer for advice on what legal challenges The Society could consider taking
Scottish Government Contaminated Blood Proposal
Today the Scottish Government made their announcement on the proposal for people affected by contaminated blood in Scotland. We will update on news in the rest of the UK as soon as possible. Scottish government announce £20m support for infected blood support
Our guide to completing the government consultation document
Many members have been asking for help in completing the government consultation document. We have produced this guide which we hope you will find helpful. We are aware many members are considering not completing the form as they are so distressed and angry by the proposal. We very much understand
Consultation on Contaminated Blood Support
The Department of Health in England has launched a consultation on the support for people with contaminated blood. The Haemophilia Society has deep concerns about this and has prepared information for our community to help them campaign for it to be withdrawn. You can read the information here: Cover Letter