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UPDATE FROM BOARD OF TRUSTEES CHAIR, CLIVE SMITH

3 July 2020 – Here is an update from our Chair, Clive Smith. This week he talks about the forthcoming new video series Bleeding Matters Live and a discussion about the contaminated blood scandal, with guests from Canada and Ireland. He also updates us on the task of hiring a

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Second chance for recombinant VWD factor

If you have von Willebrand disease, we would like your views on a new synthetic treatment which could finally get approved this month. The first recombinant treatment for VWD, Vonicog Alfa, was rejected by NHS England earlier this year, but will be reviewed again at the end of this month.

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UPDATE FROM BOARD OF TRUSTEES CHAIR, CLIVE SMITH

19 June 2020 – Here is an update from our Chair, Clive Smith. This week he talks about the amazing WFH Virtual Summit that has been happening, and also gives details of our own Member Conference this November. He also talks about our brilliant team, many of whom people never

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Update from Board of Trustees Chair, Clive Smith

22 May 2020 – Here is an update from our Chair, Clive Smith. This week Clive talks about plans for our 70th Birthday and how you can get involved with our 7.0 Challenge, how we can come together as a community virtually and keeping in touch with your centre. If there’s

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Update from Board of Trustees Chair, Clive Smith

15 May 2020 – Here is an update from our Chair, Clive Smith. This week Clive talks about plans for our 70th Birthday and 7.0 Challenge, Knitting for Uganda and ‘The Haemophilia Society matters to us because…’ project. If there’s anything you particularly want to know more about, or something we

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Sponsored Knit for Uganda

Four years ago Dr Kate Khair went to visit a family in a remote rural part of Uganda. They had a daughter and four sons with a severe haemophilia and their mum was pregnant with another child. They lived six hours drive from the next big town in a ‘village’

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HBDCA launch new website

The Haemophilia & Bleeding Disorder Counselling Association (HBDCA) have recently launched their new website and are there for any support they can give to the community, especially during these challenging times of COVID19. www.hbdca.org.uk

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Quality Review Service publish peer reviews of the UK’s haemophilia centres

For over a year now, volunteers comprising of patients, parents/carers, HCPs and other advocates from the bleeding disorder community have been working with the Quality Review Service to run peer reviews of the UK’s haemophilia centres.  The reviews have been published today and can be found here:  https://qualityreviewservicewm.nhs.uk/reviews/  Commenting on

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The 2.6 Challenge

The 2.6 Challenge is a nationwide campaign that has been created to help charities across the UK. It’s taking place on 26 April which would have been the 40th London Marathon. On the day of the marathon The Haemophilia Society expected to raise vital funds for our important work but due

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