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POLICY

Letter from the APPG to Amber Rudd

Letter signed by members of the Haemophilia and Contaminated Blood APPG to Amber Rudd, Secretary for Work and Pensions, calling for a meeting to voice the needs of members of the affected community. Yo can read the letter in in full here

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APPG holds evidence sessions in Parliament

Over the course of the last six weeks, the All-Party Parliamentary Group (APPG) on Haemophilia and Contaminated Blood has held a series of evidence sessions in Parliament on Access to Treatment for people with bleeding disorders. Parliamentarians including Sir Peter Bottomley MP, Diana Johnson MP, Liz McInnes MP and Baroness

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Call for contaminated blood action

The APPG on Haemophilia and Contaminated Blood has written the Prime Minister to ensure that the Government sticks to its commitment to deal with problems with the contaminated blood support schemes before the infected blood inquiry begins. With the inquiry beginning its hearings tomorrow on the 30 April this deadline

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Initial Diagnosis Report Launched

Early this year The Haemophilia Society began a project to understand the experiences of families when their child is initially diagnosed with a bleeding disorder. Drawing on some of the stories shared through our #bruisednotabused campaign we reached out to our community to ask them to share their experiences. We

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Announcement from NHSE on Inhibitor Treatment

NHSE has announced that Emicizumab (marketed as Hemlibra) can be provided to Haemophilia A patients with current inhibitors under the Framework Agreement for the supply of products for the treatment of bleeding disorders as an in year service development. From 1st July it will be available for routine prophylaxis to Haemophilia

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APPG Meeting on the 31st January 2018

On the 31st January 2018 the APPG met to discuss the Contaminated Blood Inquiry and support schemes for those affected by the Scandal. You can read the minutes of the January 2018 APPG meeting here

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