Letter signed by members of the Haemophilia and Contaminated Blood APPG to Amber Rudd, Secretary for Work and Pensions, calling for a meeting to voice the needs of members of the affected community. Yo can read the letter in in full here
POLICY
APPG holds evidence sessions in Parliament
Over the course of the last six weeks, the All-Party Parliamentary Group (APPG) on Haemophilia and Contaminated Blood has held a series of evidence sessions in Parliament on Access to Treatment for people with bleeding disorders. Parliamentarians including Sir Peter Bottomley MP, Diana Johnson MP, Liz McInnes MP and Baroness
Call for contaminated blood action
The APPG on Haemophilia and Contaminated Blood has written the Prime Minister to ensure that the Government sticks to its commitment to deal with problems with the contaminated blood support schemes before the infected blood inquiry begins. With the inquiry beginning its hearings tomorrow on the 30 April this deadline
Initial Diagnosis Report Launched
Early this year The Haemophilia Society began a project to understand the experiences of families when their child is initially diagnosed with a bleeding disorder. Drawing on some of the stories shared through our #bruisednotabused campaign we reached out to our community to ask them to share their experiences. We
Announcement from NHSE on Inhibitor Treatment
NHSE has announced that Emicizumab (marketed as Hemlibra) can be provided to Haemophilia A patients with current inhibitors under the Framework Agreement for the supply of products for the treatment of bleeding disorders as an in year service development. From 1st July it will be available for routine prophylaxis to Haemophilia
Welcoming the Announcement on Contaminated Blood Scandal Public Inquiry
The Haemophilia Society has welcomed the announcement of the terms of reference of the Statutory Public Inquiry into the contaminated blood scandal during the 70s and 80s. Chief Executive Liz Carroll said: “The Community has campaigned long and hard for this Public Inquiry to be held. With this announcement of
DWP Reviewing PIP Applications from People with Bleeding Disorders
In October 2017, the Department for Work and Pensions set up a working group with individuals affected by contaminated blood and blood products to hear about their experiences of the application and assessment procedures for disability benefits. The working group highlighted issues with how claimants with haemarthropathy (a severe type
World Haemophilia Day 2018
Welcome to World Haemophilia Day Today is World Haemophilia Day. It is a day where we hold events to promote understanding and awareness of bleeding disorders. We do this while raising much needed funds for The Haemophilia Society to support our campaigning, events and services. This year’s theme This year,
APPG Meeting on the 31st January 2018
On the 31st January 2018 the APPG met to discuss the Contaminated Blood Inquiry and support schemes for those affected by the Scandal. You can read the minutes of the January 2018 APPG meeting here
The Haemophilia Society contributes to Health Select Committee Brexit report
The Health and Social Care Committee in the House of Commons today published its latest report on the impact of Brexit on medicines, medical devices and substances of human origin. We are pleased that it raises issues that we agree need to be considered by the Government to ensure the