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Coronavirus outbreak in the UK

Many of you are understandably concerned about the spread of coronavirus. There is no evidence that people with a bleeding disorder are any more likely to catch the virus than the general population but it is important to continue to follow the latest advice on minimising the chances of catching

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Organ donation rules in England are changing

Organ donation in England will move to an “opt out” system from May 2020. This means that all adults in England will be considered to have agreed to be an organ donor when they die unless they have recorded a decision not to donate or are in one of the

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Response from NHSBT regarding Corona Virus and blood safety

We understand that our members may have concerns about blood and blood product safety and the new Corona virus (now named SARS-CoV-2 which causes COVID-19 disease). We contacted the NHS Blood and Transplant service (NHSBT) for up to date information on this matter. They stated: NHSBT is monitoring the coronavirus

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Could you help with a study about your experiences of haemophilia A?

We are working with a market research agency specialising in healthcare and medical/pharmaceutical market research. They are currently working on a study for a pharmaceutical company who develop treatments for haemophilia A. We are helping them to recruit participants for this research and would like to ask for your support.

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Call for feedback from patients with von Willebrand Disease

NHS England is considering evidence which could lead to the commissioning of a new treatment for adults with Von Willebrand Disease. NHS England believes it has seen enough research from NICE (the National Institute for Health and Care Excellence) to consider making vonicog alpha routinely available and is now looking

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BBC2 documentary on vCJD

Following last night’s BBC2 documentary on vCJD – Mad Cow Disease: The Great British Beef Scandal – we are seeking advice on what this means for our community, and we will share any information with you as soon as possible. The documentary aired on BBC2 last night at 9pm. You

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