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HEALTHCARE

EHC Statement on Desmopressin Nasal Sprays availability

Late last week, we were informed of an international recall of all Ferring Parmaceuticals Limited nasal sprays containing desmopressin, including Octim®, Octostim®, Desmospray®, DDAVP Spray®. This spray is typically used in people with Von Willebrand Disease types 1 and 2 (except 2B) and mild haemophilia. It is also used for women with heavy menstrual

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Home delivery – tell us about it

If you get your medication through home delivery, we would like to hear from you. The Haemophilia Society is gathering feedback – good and bad – about home delivery of medication to find out if there are any areas that need improvement or examples of good practice that should be

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Haemophilia centre experience during lockdown

Want the chance to win a £100 worth of Amazon vouchers? Please take part in our quick survey and you could be one of five lucky winners! We want to know about your experience of services from your haemophilia centre over lockdown so we can better understand the things that

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Peer Review report on centres published today

Today sees the publication of the Overview Report of the Inherited and Acquired Haemophilia and other Bleeding Disorder Peer Review Programme. The aim of the programme was to examine the care provided in haemophilia centres across the UK and measure them against the Quality Standards developed by the UK Haemophilia

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VWD Guidelines public comment period now open

The WFH invites the global VWD community to comment on the VWD guidelines and recommendations. This is being done through an online survey where stakeholders from the community can choose to respond to the questions/recommendations. The comments can be made on all the recommendations or only on some of them. 

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Update from the European Haemophilia Consortium

Following a meeting hosted by the European Haemophilia Consortium it has been confirmed that there is not believed to be any increased risk of infection with Covid-19 for people who have had Hepatitis C, whatever their previous treatment regime, however following government advice is still important. Information from countries with

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Update on face-to-face health assessments for benefits

Please see the following statement from the Department for Work and Pensions As many of you will already be aware, face-to-face assessments have been suspended due to Covid-19. Please find the link to the government announcement here: www.gov.uk/government/news/face-to-face-health-assessments-for-benefits-suspended-amid-coronavirus-outbreak Please be assured that we are working at pace with our Assessment

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Hemlibra availability with Corona Virus

Following concerns from our community, Roche have issued the following statement about supply and availability of Hemlibra: We understand the interest in Hemlibra▼(emicizumab) for people with haemophilia A and are committed to ensuring adequate supply amid the queries around how the coronavirus might impact availability of Hemlibra. To date, Hemlibra has

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