There is a lot of misunderstanding about bleeding disorders and many people don’t know that women are affected too. In fact, tens of thousands of women across the UK are living with the symptoms of a bleeding disorder without even knowing it. Our Talking Red awareness campaign was launched to
AWARENESS
Supporter story – Father is inspired to run the London Marathon after his son is diagnosed with haemophilia A
Hello I am Sam and this is our story about our youngest son Jaxon and his recent diagnosis of moderate Haemophilia A. I have been given a place in the 2019 London marathon running on behalf of the fantastic Haemophilia Society. My youngest son Jaxon was diagnosed with haemophilia which
New report explores better outcomes for young people with haemophilia
Haemophilia 180 – Taking control A better future for younger people with haemophilia The Haemophilia Society recently worked with Roche and Chugai to produce a report looking at the issues faced by young people when they begin to take control of their own treatment. The report welcomes the advances in
World Haemophilia Day 2018
Welcome to World Haemophilia Day Today is World Haemophilia Day. It is a day where we hold events to promote understanding and awareness of bleeding disorders. We do this while raising much needed funds for The Haemophilia Society to support our campaigning, events and services. This year’s theme This year,
Meeting with the chair of the Contaminated Blood Inquiry
This week we met with Sir Brian Langstaff and some of his newly appointed Inquiry team to discuss the Terms of Reference for the forthcoming Statutory Public Inquiry into the contaminated blood scandal. Sir Brian and his team were very welcoming and he made it very clear he was there
New Dates for Rescheduled Road Shows in Bristol and Belfast
We have been working on rescheduling the postponed roadshows and are pleased to announce that the new date for the Bristol roadshow is Tuesday 27th March and the Belfast roadshow will be on Tuesday 17th April. If you would like to attend please let us know at publicinquiry@haemophilia.org.uk or call us on
The Terms of Reference for the Inquiry
The Terms of Reference of a Statutory Public Inquiry define the scope of the Inquiry’s investigations. The Chair will be consulting on the Terms of Reference in the next couple months. This is the first important step in the setup of the inquiry and it is vital that the whole
Welcoming the appointment of a Chair for the Public Inquiry
The Haemophilia Society today welcomed the appointment of a chair to lead the Statutory Public Inquiry into contaminated blood and blood products. The Haemophilia Society today welcomed the appointment of Sir Brian Langstaff to lead the Statutory Public Inquiry into contaminated blood and blood products. Liz Carroll, Chief Executive of
Evidence in the Statutory Inquiry into Contaminated Blood Products
The Haemophilia Society is committed to achieving justice for its members through the long awaited Statutory Inquiry process. The Society welcomes that its actions will be investigated as part of the Inquiry process. It is essential that all parties related to the contaminated blood scandal are subject to the full
Chair of Public Inquiry to be announced very shortly
In response to an urgent question from Diana Johnson MP today, the Government stated that a chair for the Contaminated Blood inquiry will be appointed ‘very shortly’. Chloe Smith MP responded on behalf of the Government saying that it was an appalling tragedy that shouldn’t have happened and that people