The video recordings of the webinars on women and bleeding disorders held on 28 and 29 May 2020 are now available on the The European Haemophilia Consortium (EHC) YouTube Channel. * To watch the webinar on the management of heavy menstrual bleeding, click here* To watch the webinar on the
AWARENESS
Update from Board of Trustees Chair, Clive Smith
1 May 2020 – Here is an update from our Chair, Clive Smith. This week Clive talks about our CEO’s recent departure, our new rare disease booklet, the amazing World Haemophilia Day activities that took place and also he talks about our plans for our 70th Birthday. If there’s anything
World Haemophilia Day 2020
It’s World Haemophilia Day today, Friday 17 April and and we would love you to join us in marking this important day. Here’s a round-up of what you can do to show your support! Host a virtual Buddies Who Brunch this weekend and make sure to include our red theme!
Update from the European Haemophilia Consortium
Following a meeting hosted by the European Haemophilia Consortium it has been confirmed that there is not believed to be any increased risk of infection with Covid-19 for people who have had Hepatitis C, whatever their previous treatment regime, however following government advice is still important. Information from countries with
WFH World Congress in Malaysia cancelled
The World Federation of Hemophilia has called off its World Congress in Malaysia as a result of the coronavirus pandemic. It has also been announced that the European Haemophilia Consortium has cancelled all of its events until the end of June. The WFH World Congress had been due to take
Coronavirus outbreak in the UK
Many of you are understandably concerned about the spread of coronavirus. There is no evidence that people with a bleeding disorder are any more likely to catch the virus than the general population but it is important to continue to follow the latest advice on minimising the chances of catching
Scotland step closer to becoming first country in world to make sanitary products free for all women
Last month we welcomed a new scheme that allows schools and colleges in England to order free period products for students as part of a government scheme to tackle period poverty. Today it has been announced that Scotland is on the path to become the first country in the world
Our Youth Ambassador Scott has shared his story of how haemophilia impacted his mental wellbeing
It was very difficult as a child to understand why I was being treated differently to everyone else. Why I was constantly in and out of hospital and my family were not. Trying to understand why I needed to have regular injections, and screaming down the hospital ward when I
We need you! #TalkingRed – Another Bleeding Survey
There are more than 15,000 women and girls with a diagnosed bleeding disorder in the UK, but we believe that many thousands more are suffering in silence, unaware of their condition. Some of the common symptoms of a bleeding disorder in women include: · heavy periods· bruising easily· prolonged bleeding
It’s time to talk about bleeding – Christmas Appeal 2019
Help be the difference to women with bleeding disorders this Christmas. The reality of what #OurCommunity goes through, especially women, was felt to be too important to skip over. That’s why this year, we are focusing our Christmas appeal on women with bleeding disorders and our Talking Red campaign. Women’s